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ATB Place lights up for Huntington's

Posted on: May 17, 2017

ATB Place lit up for Huntington disease

The juvenile form of Huntington disease is rare. So is Tayah Butz.

“She is one of the only people I know who would never say anything bad about anyone,” says Sharon Bindon, her grandmother.

Tayah, 20, has Juvenile Huntington disease. It is an aggressive brain disorder. Those diagnosed with it face emotional turmoil, cognitive loss and physical deterioration.

Tayah and her grandma

Sharon wants Albertans to know more about the affliction and the support needed for those affected, and those working to find a cure.

She approached ATB Financial to light ATB Place for Tayah. May is Huntington Disease Awareness Month.

On May 17 and 18, ATB Place will illuminate in blue and purple. Blue is for Huntington’s. Purple is for the rare juvenile form.

Sharon hopes to light up more than the Edmonton skyline.

“Tayah will be ecstatic,” she says. “It is amazing it can be done and that ATB wants to do it. It’s going to make us all very happy.”

For more information or to donate, visit huntingtonsociety.ca.

 

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